It has been 20 years since the Institute of Medicine declared accurate, reliable, and respectful collection of information from patients about their race and ethnicity to be a fundamental precondition ...
The PHG Foundation warmly welcomes the recently published WHO principles for human genome data collection, access, use and sharing. It is a timely and important contribution to global governance, ...
WASHINGTON (Reuters) - The U.S. Consumer Financial Protection Bureau is turning its attention to companies that collect consumer financial information to provide services and products. The regulator ...
The considerations for ethical data collection outlines some of the key ethical considerations around data collection. While specifically developed for Results Monitoring Surveys (RMS), principles ...
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