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I want it to stop — not just the seizures, but the way epilepsy steals pieces of my family every single day. It’s not fair. Why am I stuck with a disease that causes relentless epileptic seizures? Why do my children have to witness this? When my husband is trying to save me, he asks Halston to help Payson, and that’s when my heart shatters. It’s not her job to help her little sister. It’s not her job to distract her while mom is seizing and dad is making sure I’m still breathing — while he’s inj
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After almost a year with her VNS, I’ve seen a huge decrease in seizures… but an increase in Rett episodes. The hard part is, there’s no cure or real relief for Rett episodes. So with everything her body is already dealing with, I want to ease some of the load where I can. We’re going to start weaning off some of her seizure medication and see how she does. I’ll be sharing this journey with you 💜 #rettsyndrome #disability #fyp #momsoftiktok #epilepsy
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TikTok_bodiedbybri
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