Hydrocephalus Awareness Month is almost here! This September, we’re diving deeper into what it really means to live with hydrocephalus. Every journey is unique—and this year we’ll be challenging assumptions, busting myths, and sharing stories that often go unseen. We’ll be dropping weekly quizzes and sharing a social media toolkit to help you join the conversation. Find everything you need to get involved here: https://www.hydroassoc.org/ham2025/ | Hydrocephalus Association
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Hydrocephalus Awareness Month is almost here! This September, we’re diving deeper into what it really means to live with hydrocephalus. Every journey is unique—and this year we’ll be challenging assumptions, busting myths, and sharing stories that often go unseen. We’ll be dropping weekly quizzes and sharing a social media toolkit to help you join the conversation. Find everything you need to get involved here: https://www.hydroassoc.org/ham2025/ | Hydrocephalus Association
3.9K viewsAug 29, 2025
FacebookHydrocephalus Association
Knowledge is power! This fall, join our free webinars to get the latest on hydrocephalus research, early brain development, survivor’s guilt, and seizure management. Don’t miss your chance to learn from experts and ask your questions live! https://www.hydroassoc.org/webinars/ #HAM2025 #HAM25 #HydrocephalusAwarenessMonth #Hydrocephalus | Hydrocephalus Association
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Knowledge is power! This fall, join our free webinars to get the latest on hydrocephalus research, early brain development, survivor’s guilt, and seizure management. Don’t miss your chance to learn from experts and ask your questions live! https://www.hydroassoc.org/webinars/ #HAM2025 #HAM25 #HydrocephalusAwarenessMonth #Hydrocephalus | Hydrocephalus Association
1.6K viewsSep 7, 2025
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This year brought real momentum for the hydrocephalus community. from groundbreaking studies to new clarity for people with iNPH after the PENS Trial. These advancements mean more hope, more answers, and more families supported! Your year-end gift can keep lifesaving research on track and ensure families aren’t left without support. If you can, please donate today: https://give.hydroassoc.org/campaign/747339/donate?c_src=Social | Hydrocephalus Association
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This year brought real momentum for the hydrocephalus community. from groundbreaking studies to new clarity for people with iNPH after the PENS Trial. These advancements mean more hope, more answers, and more families supported! Your year-end gift can keep lifesaving research on track and ensure families aren’t left without support. If you can, please donate today: https://give.hydroassoc.org/campaign/747339/donate?c_src=Social | Hydrocephalus Association
535 views10 months ago
FacebookHydrocephalus Association
Hydrocephalus Awareness Month is in full swing! Thank you for standing with us as we challenge assumptions, bust myths, and elevate the voices of our community. This week, we’re inviting you to go even deeper—expand your knowledge, share what you learn, and help spread awareness. Take Quiz 2️⃣ today: https://forms.gle/1pqTHvSVACnBGZ4ZA #HAM2025# #HAM25 #HydrocephalusAwarenessMonth #Hydrocephalus | Hydrocephalus Association
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Hydrocephalus Awareness Month is in full swing! Thank you for standing with us as we challenge assumptions, bust myths, and elevate the voices of our community. This week, we’re inviting you to go even deeper—expand your knowledge, share what you learn, and help spread awareness. Take Quiz 2️⃣ today: https://forms.gle/1pqTHvSVACnBGZ4ZA #HAM2025# #HAM25 #HydrocephalusAwarenessMonth #Hydrocephalus | Hydrocephalus Association
1.5K viewsSep 8, 2025
FacebookHydrocephalus Association
Ever wonder what cerebrospinal fluid actually does? From cushioning the brain to removing waste, CSF plays a vital role in brain health. This article takes a closer look at how CSF is produced, how it circulates, and why that delicate balance matters. www.hydroassoc.org/cerebrospinal-fluid-and-hydrocephalus | Hydrocephalus Association
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Ever wonder what cerebrospinal fluid actually does? From cushioning the brain to removing waste, CSF plays a vital role in brain health. This article takes a closer look at how CSF is produced, how it circulates, and why that delicate balance matters. www.hydroassoc.org/cerebrospinal-fluid-and-hydrocephalus | Hydrocephalus Association
10.3K views9 months ago
FacebookHydrocephalus Association
HA's 2026 Scholarship cycle is officially open! 🎉🎓 🏫 Details and application information are available here: https://www.hydroassoc.org/Scholarship/ | Hydrocephalus Association
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HA's 2026 Scholarship cycle is officially open! 🎉🎓 🏫 Details and application information are available here: https://www.hydroassoc.org/Scholarship/ | Hydrocephalus Association
835 views10 months ago
FacebookHydrocephalus Association
What is the Congressionally Directed Medical Research Program (CDMRP)? And how will the recent $859 million budget cut affect federally funded hydrocephalus research? We're here to explain! 🎥 Now is the time to urge Congress to restore these critical funds: https://bit.ly/3Yf94F7 #Hydrocephalus #Research #HydrocephalusResearch #CDMRP #Advocate #HydrocephalusAdvocacy #YourVoiceMatters #AdvocacyMatters | Hydrocephalus Association
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What is the Congressionally Directed Medical Research Program (CDMRP)? And how will the recent $859 million budget cut affect federally funded hydrocephalus research? We're here to explain! 🎥 Now is the time to urge Congress to restore these critical funds: https://bit.ly/3Yf94F7 #Hydrocephalus #Research #HydrocephalusResearch #CDMRP #Advocate #HydrocephalusAdvocacy #YourVoiceMatters #AdvocacyMatters | Hydrocephalus Association
974 viewsApr 2, 2025
FacebookHydrocephalus Association
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Don't miss this week's episode of Hydro Heroes Unite! 🎙️ Caring for a loved one with hydrocephalus or another complex condition takes a village. In this episode, Dr. Elizabeth McRae shares insights on building resilience, self-advocacy and caring for caregivers. Tune in and let #HydroHeroesUnite be part of your village! Listen now: https://www.hydroassoc.org/podcast-self-care-pediatric-psychologist/ | Hydrocephalus Association
690 viewsOct 16, 2025
FacebookHydrocephalus Association
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Hydrocephalus isn’t just a childhood condition—it affects people at every stage of life. We’re breaking down the myths and sharing the facts: https://www.hydroassoc.org/breaking-myths-about-hydrocephalus/ #HAM2025 #HAM25 #HydrocephalusAwarenessMonth #Hydrocephalus | Hydrocephalus Association
3.2K viewsSep 6, 2025
FacebookHydrocephalus Association
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Today is World Hydrocephalus Day! 🌎💙 Every year on September 20th, our global community unites to raise awareness, amplify voices, and inspire change for the millions of children, adults, and families affected by hydrocephalus. Here’s how you can participate: 🔵Share your story and why you care using #WorldHydrocephalusDay 🔵Learn more and take action: https://worldhydrocephalusday.org/participate/ 🔵Wear blue this weekend and spread awareness Together, we can make hydrocephalus visible and in
2.6K viewsSep 20, 2025
FacebookHydrocephalus Association
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Billy Joel’s diagnosis is raising awareness about a condition that’s often overlooked: normal pressure #hydrocephalus (NPH). If you’ve noticed the signs in yourself or a loved one, it’s time to learn more. hydroassoc.org/NPH #NormalPressureHydrocephalus #NPH #HydrocephalusAwareness #KnowTheSigns #BrainHealth #YouAreNotAlone #BillyJoel #PianoMan #HealthAwareness | Hydrocephalus Association
5.4K viewsMay 29, 2025
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Don’t miss the season finale of the Hydro Heroes Unite podcast! Scott joins Taisha to share his perspective as a dad navigating their daughter Angelica’s hydrocephalus and Dandy-Walker diagnosis. This episode is funny, heartfelt, and deeply hopeful. It’s a tribute to caregivers, partners, and every family who has ever weathered a storm together. https://www.hydroassoc.org/podcast-scott-angelicas-story/ If this season moved you, please share the episode or leave a review to help more hydro famili
536 views11 months ago
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Understanding Vexanna's Condition: Hydrocephalus Awareness
44.4M views8 months ago
TikTokwhatsuptony
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✨💙 Today Riley wanted to share her story and spread awareness about hydrocephalus. ✨ Hydrocephalus is a condition where fluid builds up in the brain. It affects 1 in every 1,000 babies, but it can happen to anyone—at any age. There’s no cure, only treatments. The most common treatment is a shunt (a tiny tube that helps drain the fluid) or a surgery called ETV (endoscopic third ventriculostomy), which creates a new pathway for the fluid to flow. For many hydrocephalus warriors like Riley, shunts
638.2K viewsSep 4, 2025
TikTokrynyandmommy
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A hidrocefalia afeta aproximadamente 1 a cada 1.000 crianças no mundo e é uma das condições neurológicas mais comuns na infância, exigindo acompanhamento contínuo e cuidados especializados (Hydrocephalus Association, 2021). Cauã recebe muito amor da sua mãe/avó, que está junto dele 24 horas por dia ❤️ Mesmo diante de tudo, o cuidado, a força e o amor que o cercam mostram, todos os dias, que a vida ainda pode ser bonita 🙌🏻✨ 🎥: @matfe7 #fy #odontologia #saude
553.2K views6 months ago
TikTokdracarolpantaleao
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Hydrocephalus Awareness: Layla’s Story of Faith and Strength
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TikToknyambekadiaries
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Understanding Spinabifida and Hydrocephalus Challenges
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TikTokhydrowarriorspinabifida
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Replying to @Isavel Case study 143 - Normal Pressure Hydrocephalus September is hydrocephalus awareness month! Normal pressure hydrocephalus (NPH) is a form of communicating hydrocephalus in which excess cerebrospinal fluid (CSF) builds up in the ventricles, leading to normal or slightly elevated cerebrospinal fluid pressure. The fluid build-up causes the ventricles to enlarge and the pressure inside the head to increase, compressing surrounding brain tissue and leading to neurological complicat
313.8K viewsSep 16, 2024
TikTokladyspinedoc
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Understanding Spinabifida and Hydrocephalus Challenges
95.5K views8 months ago
TikTokhydrowarriorspinabifida
Hydrocephalus Awareness: A Call to Action
64.9K views7 months ago
TikTokgrace.mwangi267
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